Equality vs Equity: Real time education via medication
Pictured is one medication, for the same person, but in two different forms. This example was a light bulb moment for me that is very...
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exceptionalliving1
- Mar 20, 2023
- 2 min
Twelve Minutes Helped Me Heal
I'm good at going down rabbit holes. Usually I waste a lot of time chasing those damn rabbits that usually don't give me the information...
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exceptionalliving1
- Jan 30, 2023
- 3 min
Hidden, Unknown, Lost and Found Treasures
**Trigger warning - this piece touches on death, medical mishaps and a challenging birth experience that could be activating** It’s been...
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exceptionalliving1
- Jan 17, 2023
- 3 min
Preparing for a Good Death
Preparing for a Good Death (originally written summer of 2022) *Trigger warning - this piece talks about death,anticipating death of a...
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exceptionalliving1
- Jan 9, 2023
- 2 min
Today, I Failed
Saturday morning is set aside for Jiu-Jitsu practice. I started going a few months so I could face some fears that I didn’t realize I...
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exceptionalliving1
- Aug 23, 2022
- 1 min
I want a simple life
I want a simple life I want simple, yet I’d gladly take back my normal life I want a simple life, where things move and operate smoothly....
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exceptionalliving1
- Jul 21, 2020
- 2 min
I Want A Simple Life
I want a simple life I want simple, yet I’d gladly take back my normal life I want a simple life, where things move and operate...
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exceptionalliving1
- Apr 16, 2019
- 1 min
Baby bird
Mom was fussing with enteral supply company earlier b/c people not doing their job impacts my life. She told the supervisor "help me help...
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Naomi D. Williams
- Apr 19, 2018
- 2 min
You’re, that, this is…retarded.
What do you REALLY mean? I had a hallway encounter and shared it on my personal FB page, yet its well worth and deserving of a blog. So...
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Naomi D. Williams
- Feb 28, 2018
- 4 min
There ARE still good people in the world
Another typical Sunday full of our usual activities, church, laundry, house chores, a long run and whatever else we can find to get into...
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Naomi D. Williams
- Jan 7, 2018
- 2 min
Recalculating…from FML to PTL
Smartphones, GPS, and advances in technology have drastically changed how many of us navigate through life. The device, the service...
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Naomi D. Williams
- Jan 20, 2017
- 2 min
We (You) DID IT!
WE (YOU) DID IT!!!!!! One of the few times in my life – I’m SPEECHLESS! Pearl, the Noah Mobile has found its forever home! THANK YOU just...
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Naomi D. Williams
- Dec 14, 2016
- 1 min
Why did God make Noah different?
Kids have questions…LOTS of questions! And as parents, they expect us to have ALL the answers. Over the years, and especially now since...
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Naomi D. Williams
- Dec 7, 2016
- 3 min
Give Thanks
There have been times when I thought God made a mistake when He gave Noah me and me Noah. There are days I think He overestimated what...
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Naomi D. Williams
- Nov 15, 2016
- 3 min
My name is Noah
If Noah could talk, I would coach him to say:
“I'm not my DOB. I'm not my MRN. I'm not my SS#. And just in case you were wondering, I'm not
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Naomi D. Williams
- Oct 26, 2016
- 2 min
Want to Know Wednesday: What will you do when Noah gets bigger?
I've been getting this question since Noah was two years old. My response now is the same as it was then, “I don’t know. I will cross...
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Naomi D. Williams
- Oct 18, 2016
- 2 min
Want to know Wednesday: What can people do to help you when out with Noah
Want to Know Wednesday – What can someone do to help you when you are out with Noah? Oh, this is a GREAT question. Every family may...
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Naomi D. Williams
- Oct 4, 2016
- 3 min
Want to Know Wednesday: What's Wrong with Him?
Want to Know Wednesday: Hoping this will be the start of a weekly win-win! I get asked questions about Noah and his condition as well as...
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Naomi D. Williams
- Sep 24, 2016
- 2 min
Fullest Expression of Me
I am kind. I am fearless. I am loveable. I am true to myself and others. I value others’ opinions, but their opinion isn’t my truth. I...
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Naomi D. Williams
- Sep 24, 2016
- 3 min
How yoga saved his life
(9/2/16) 3:58am the moment I realized I'll never have a typical life.I hear a strange noise. I'm dreaming. I hear the strange noise...
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